This Privacy P olicy applies to information we collect from persons, either electronically, via postal mail, in-person or over the phone, in connection with their relationship with Autism Research and Resources of Oregon (ARROAutism) whether it be for a donation, a survey, registrants or participants in ARROAutism webinars or any other ARROAutism sponsored event, and users of any related services, applications or sites that link to this Privacy Policy (the “Services”).
The Policy describes ARROAutism’s collection and use of users’ Personal Information (e.g., information that identifies a specific person, including name, postal address, phone, email address, or payment information where that information is not otherwise publicly available.)
It also describes generally ARROAutism’s practices for handling additional information (e.g., interests, demographics and site usage) you submit through us or from a third party to the extent it is associated with a specific user or user account or device.
By using this Site and/or the Services, you agree to the terms and conditions of this Privacy Policy. If you do not agree to the terms and conditions of this Privacy Policy, do not use the Site or the Services. Services offered by the Autism Research and Resources of Oregon (“ARRO”, “ARROAutism”, “us” or “we”) include all officially maintained and managed ARROAutism websites (“the Site”), including a variety of sub-sites and micro-sites such as “ARROAutism.org,” “ARROAutismPDX.org”, PayPal donations, GoFundMe donations, and a variety of other surveys, websites and sub-sites.
Health Insurance Portability and Accountability Act (HIPAA) – ARROAutism is aware of HIPAA and of the rules surrounding the Health Information Act. We keep no health information concerning the families and individuals with Autism that interact with ARROAutism in any way.
https://www.hhs.gov/hipaa/index.html
ARROAutism must protect the confidential nature of the Fundraising/donation relationship.
ARROAutism must act in good faith with regard to the legitimate interests of the family and donor in use of confidential information and in the communication of donations.
ARROAutism must be aware of, and comply with, all confidentiality and privacy laws and regulations applicable in a donation. (According to the Gram-Leach Bliley Act of 1999, the FTC issued two rules – nonpublic personal information includes financial activities closely related to banking or usual in connection with the transaction of banking.)
ARROAutism must not disclose: 1) confidential information or 2) donation information to anyone other than:
The donor
Parties specifically authorized by the donor
State and federal regulatory agencies
Third parties as may be authorized due process of law; or
A duly authorized professional applicable law or regulation.
ARROAutism must take reasonable steps to safeguard access to confidential information and donor information by unauthorized individuals, whether such information is in physical or electronic form.
ARROAutism must ensure that employees, co-workers, volunteers, or others who may have access to confidential information are aware of the prohibitions on disclosure of such information or results.
Nondiscrimination Policy: The Autism Research and Resources of Oregon, ARROAutism, does not discriminate on the basis of race, color, national origin, religion, gender identity or expression, sex, disability, veteran status, sexual orientation, age, marital status or genetic information in its programs, awarding of grants, and/or other activities.
