Autism Medical Information Support Group 3/22/2011

Medical information broken down to a parent level

This is a free information support group for family members of individuals with autism. We discuss autism medical research information from medical articles and conferences. Questions are welcome and encouraged so that families can make informed medical decisions. The format includes review of medical articles and web information, and invited speakers in any of the medical and therapeutic specialties. All interested parties are welcome to attend.Meetings are held January through October. There is no meeting in November or December.Call ahead to confirm the meeting if the weather is snowy or icy in January.

When

Tuesday, 03/22/2011
7:00 P.M.

Where

ARRO Westside Family and Community Center
2360 Sw 170th Ave
Beaverton, OR 97006

Please come and bring your questions!

Everyone is welcome to attend this free support group.

For more information or directions, call 503-351-9255

You may also register for this Autism Medical Information Support Group

Posted in Support Groups, Westside Family and Community Center | Comments Off on Autism Medical Information Support Group 3/22/2011

Coaching Session for Parents and Guardians of ASD Children Sunday, March 20, 2011

An ARRO Autism Westside Family and Community Center Event
FREE Coaching Session for parents and guardians of ASD children

Date :

20 March, 2011 (Sunday)

Time :

1 PM to 3 PM

Location :

ARRO Westside Family and Community Center

Cost :

Free (Donations Welcome)

Registration :

Speakers :

Jenell Streeter, M.S.

Additional Details :

Bring your questions, concerns, and challenges. Jenell Streeter, M.S. in Psychology (expert parent, mother of children on the spectrum) will be facilitating the group. The goal is for every attendee to have at least one of their specific issues addressed in the session.
• Refreshments will be provided.
• No child care is available at this time.
• Donations to help cover costs are welcome.
So we can anticipate the number of attendees, please RSVP to Jenell Streeter (autismcct@yahoo.com).

Posted in New!, Support Groups, Westside Family and Community Center | Comments Off on Coaching Session for Parents and Guardians of ASD Children Sunday, March 20, 2011

2011 Sean’s Run From Autism

Sean's Run from Autism Logo 2008

Sean’s Run from Autism is the best way for runners to get an early start on the season while doing good. Entry fees, merchandise sales and sponsorship tent monies all directly benefit the Autism Research and Resources of Oregon.

DISTANCES AND COURSE:

5k (3.11 miles) and 10k (6.2 miles)
This scenic out-and-back course will begin and end in Historic Oaks Park on the Willamette River, then wind along the Willamette Greenway before turning around and heading back into Oaks Park.
Runners will not need to decide on their distance until reaching the 1.5 mile of the event.

ENTRY FEES:

Sean Running at Sean's Run from Autism at Historic Oak's ParkPre-Registration ends Monday 4/25
Pre-Registered Entries $ 20
ORRC Members $ 15
All Entries – After April 25 $ 25
Kids Run — under 12 years $ 10
(T-shirts Not Guaranteed for Day-of-Race Entries)

RESULTS:

Results for both races will be posted on the ARRO (arroautism.org) and the Sean’s Run (www.seansrun.org) websites.
They will also be e-mailed to any participants that leave an e-mail address.

AWARDS:

Ribbons will be awarded 3 places deep in ORRC 5-year age groups.
Awards ceremony will take place at approximately 11:30 a.m.

QUESTIONS and VOLUNTEERS:

To volunteer, or for questions, please call 503-284-0350 or email Kathy at: kathyh@arroautism.org
or Daniel at: dsbrewer@gmail.com

WHEN:

Saturday, April 30, 2011
Registration opens 9 a.m.
All events – 10:00 AM

WHERE:

Oaks Park
7805 SE Oaks Park Way
East End of the Sellwood Bridge
Portland, Oregon

REGISTRATION:

Registration is easy. Choose the method that works best for you :

Pledge your Support

Whether you’re running, or just want to help out, you, your friends, neighbors, co-workers and area businesses can pledge your support for Sean in his Run from Autism. To learn more, click here :

2011 Sean’s Run from Autism Pledge Sheet

Thanks to our Corporate Sponsors

Team Reliv Logo - Sponsoring Sean's Run from Autism 2011

Posted in Autism Activities, Calendar, Fundraisers, New!, Other Events, Resources, Sean's Run for ARROAutism | Comments Off on 2011 Sean’s Run From Autism

Early Detection of Autism In High-Risk Siblings

Who:

OHSU Center for Spoken Language and Understanding

Purpose:

To develop state-of-the-art, non-intrusive tools to detect early signs of autism and other developmental disorders in infants.

Description of study:

We are observing high-risk and typically developing infants during simple, everyday activities. We will be looking for differences in the development of motor, vocal, and interactive behaviors that may be early markers of autism or of other developmental disorders.
CSLU’s innovative technologies will lead to the baby monitor of the future.

Inclusion criteria:

Families with babies 0- to 6-months-old who also have an older child that:

  1. Has an autism spectrum disorder. (i.e.,
    Autistic disorder, Asperger?s, PDD-NOS)
  2. Has a developmental delay or learning disability. (i.e., language disorder, ADHD, dyslexia)
  3. Is typically developing. (no family members
    with history of developmental delays)

Exclusion criteria:

None known

Participation:

What would you need to do?

  • You will be asked to visit the CSLU nursery twice a month for 6 months.
  • Visits will be about 1.5 – 2 hours, depending on your baby?s age and individual needs, and can be scheduled flexibly.
  • During your visit, you play with your baby as you do at home.
  • You will be asked to return for follow-up visits 2 or 3 times each year until age 3.

What will we provide?

  • Evaluations of your baby.
  • Free consultation with our pediatric
  • neuropsychologist.
  • Compensation for your time.

Principal Investigator(s) :

  • Jan van Santen, PhD
  • Lois Black, PhD

Location(s) :

 

 

 

Contact Details :

  • Alison Hill, PhD, Study Coordinator
  • Phone : 503-748-1602
  • E-mail : infantstudy@cslu.ogi.edu

Known Funding Sources :

  • none known

 

Privacy Notice:

  • OHSU protects the privacy of its research subjects’ personal health information. If you would like a copy of the OHSU Notice of Privacy Practices, please ask for a copy at your next visit or call 503 494-0444.

 

Download a copy of the CSLU Infant Brochure ASD.

Posted in 2011, Research | Comments Off on Early Detection of Autism In High-Risk Siblings

GAINS MEETING 22 February 2011

Autism Society of Oregon LogoGrandparents of Autistic Individuals Need Support – Parents are invited too!

Let’s talk Siblings!

Date:

February 22, 2011 (Tuesday)

Time:

10:30 a.m. to noon

Location :

ARRO Westside Family and Community Center

Cost :

Free ($5 Donations Requested)

Registration :

Please RSVP  by calling the ASO office at (503)636-1676 or sending an e-mail to info@oregonautism.com.

Speakers :

Eileen Garvin

Additional Details :

Our speaker at the next meeting will be Eileen Garvin, author of How to be a Sister: A Love Story with a Twist of Autism. Eileen is the youngest of five children and she has always been close with her sister, Margaret, who is three years her senior and was diagnosed with autism the month Eileen was born.  She will talk about life growing up with Margaret and how their relationship has grown over time.  Eileen is a freelance writer for newspapers, magazines and website.  She lives in Hood River with her husband.  Eileen will have her book available for sale and will do a book signing.

Praise for the book“…..Garvin’s storytelling abilities are strong, and her fierce, protective love for Margaret, whom she brings to stinging life on the page, gives this book real power.” WASHINGTON POST

Visit http://www.oregonautism.com/ for more information about ASO.

Click this link for a PDF version of this document.


Posted in Autism Activities, New!, Support Groups, Westside Family and Community Center | Comments Off on GAINS MEETING 22 February 2011

Factors Affecting Parents’ Decisions

Sarah Hall, a doctoral student in the Department of Educational Psychology at Texas A&M University, is seeking participants for a short survey examining the factors that influence parents to treat their children with an autism spectrum disorder with complementary and alternative treatments. The purpose of the study is to gain information about why parents choose these treatments, and factors that influence their decisions. The survey includes questions regarding parents’ use of, and feelings toward, different types of treatments, parents’ perceptions of their child’s behavior and severity of symptoms, and demographic information.

The Survey:

Please take a moment to fill out this survey by clicking on:

https://www.surveymonkey.com/s/5FVB9YF

End Date:

The survey will run through February 21st, 2011

Questions :

If you have questions, please contact Sarah E. Hall at 409-423-0170, or by email at chi2blubug@tamu.edu.

This research study has been reviewed by the Human Subjects’ Protection Program and/or the Institutional Review Board at Texas A&M University.

Posted in Surveys | Comments Off on Factors Affecting Parents’ Decisions

Senate Health Care, Human Services and Rural Health Committee Hearing on 2/16/2011

Oregon State Capitol Salem Oregon

Reminder – our next big step in passing Autism Health Insurance Reform will be the Senate Health Care, Human Services and Rural Health Committee Hearing on Wednesday, February 16th, at 3:00 PM.

Date:

Wednesday, February 16th

Time:

3:00 PM (Please plan to arrive by about 2:30 PM)

Location:

  • Hearing Room A
  • Oregon State Capitol
  • 900 Court St. NE, Salem, Oregon 97301

Additional Details :

Paul spent the day in Salem yesterday (Friday), and many people were talking about how well they thought our House Health Care committee hearing went on Monday the 7th.  We definitely made an impact, and the committee is following up on our concerns seriously and carefully.

This week’s hearing in the Senate will be different, more challenging, and more critical.  We can expect tough, serious questions about the bill, and we’ll be strictly limited to 30 minutes total for all testimony and questions.

The hearing will be more critical because our strategy from the beginning has been to move through the Senate first if possible – which means we really need to get at least 3 of the 5 committee members to vote with us.  So far, Paul believes we have 2 probable votes (both Democratic), but the Chair (Sen. Laurie Monnes Anderson) has told Paul that she won’t allow the bill to proceed without at least 1 Republican vote as well.  Without her permission, the other committee members won’t even be allowed to vote – which would force us to readjust our strategy and take a potentially riskier path through the House instead.

Fortunately, we do have a very strong team for this hearing; our bill sponsor, Sen. Chris Edwards of Eugene, will personally give the lead testimony.  Paul is working with his staff to arrange a set of speakers that will cover the key topic areas.

  • Please do come to the hearing if you can – this hearing is critical, and we need to have a strong showing in the audience to make it abundantly clear that we care and aren’t going let them push this aside
  • Given the short amount of time that we are being given for this hearing, Paul has been told that it won’t be possible for everyone who wishes to give oral testimony.  They will give preference to members of the public who didn’t give testimony in the House Health Care committee hearing
  • If you can’t come to the hearing, please do submit written testimony – this should be a short (1 page) letter asking them to support the bill, and explaining the impact on you, your family, or your clients of not being able to get insurance coverage for medically necessary care.  You can send it to Paul at paul@terdal.com, and he will bring it in for you

Our bill will be near the beginning of the agenda, so we’ll probably be done by 3:45 PM.  If you have the time, you are encouraged to briefly visit your own legislator’s offices to ask them for their support for the bill.  Paul would be happy to lead anyone interested in this into the House and Senate office buildings.

Senate Health Care Committee Hearing – Wednesday, February 16th, 3:00 PM:

Please contact Paul if you are interested in coming to the hearing! He can be reached at paul@terdal.com or by phone at (503)984-2950.

If you can’t make it to the hearing, but would like to submit a written letter, please e-mail it to Paul, and he will bring it in for you.

Social Networking Tools:

We have created an e-mail distribution group to facilitate two-way communication.  Paul will send you an invitation from Yahoo Groups for this; if you would like to be able to communicate with others working on the insurance issue, this is a great way to do it – but it is purely optional.  You can sign up on your own by sending e-mail to:  AutismInsuranceOR-subscribe@yahoogroups.com.

Thanks,

Paul Terdal,

Parent

Posted in Legislative | 1 Comment

Using the iPad for Augmentive Communication and Proloquo2go software

Proloquo2go on Ipad Workshop at ARRO Westside Family and Community CenterWorkshop on using the iPad for Augmentive Communication and Proloquo2go software.

Date :

11 February, 2011 (Friday)

Time :

08:30 AM to Noon

Location :

ARRO Westside Family and Community Center

Cost :

Free (Donations Welcome)

Registration :

http://arroautism.org/resources/events/event-registration?regevent_action=register&event_id=7&name_of_event=Using+the+iPad+for+Augmentive+Communication+and+Proloquo2go+software

Speakers :

Daniel Brewer

Additional Details :

The Topics covered will include:

  • AugComm Devices (the Current vs. the Ipad)
  • Basics of the Ipad
  • Proloquo2go software (Licensing and Particulars)
  • (Setting it up, organizing it, and resources available.) [This will be the majority of the workshop]
  • Tips for organizing the Proloquo2go for maximum customization.
  • Other important AugCom and learning software we’ve found.

Please feel free to forward this notification to whomever might be interested.

Posted in Autism Activities, Lecture, New!, Westside Family and Community Center | Tagged , , | Comments Off on Using the iPad for Augmentive Communication and Proloquo2go software

Autism Health Insurance Reform Meeting : 4 February 2011

Our next Autism Health Insurance Reform meeting will be Friday, February 4th, at 7:00 PM.

We will plan our presentation for the House Health Care committee hearings – including logistics, testimony, and opportunities to meet with other legislators while in Salem.  We will also be joined by Andrew, the legislative assistant for Rep. Buckley, one of our bill sponsors, who will give his advice and input on how to make our case in Salem.

Date:

Friday, February 4th

Time:

7:00 PM to 8:30 PM

Location:

Room 202
First United Methodist Church
1838 S.W. Jefferson Street
Portland, Oregon   97201

Childcare:

On-site, professional childcare will be provided.  Bring your children to the Nursery, which is at the opposite end of the hall from Room 202, where we will meet.  There is no cost, but donations will be accepted.  A map of the church building can be found here:  http://fumcpdx.org/pdf/FUMC_map_2007_color.pdf

If possible, please let me know if you will be coming to the meeting, and if you plan to bring your children.  If your children have any particular needs or interests that you would like the childcare staff to be aware of in advance, please let me know and I’ll pass it along.

Thanks,
Paul Terdal,
paul@terdal.com
(503)984-2950

Posted in Legislative | Comments Off on Autism Health Insurance Reform Meeting : 4 February 2011

PROPOSED STATE BUDGET CUTS TO DD SERVICES

Rough Waters Ahead!
PROPOSED STATE BUDGET CUTS TO DD SERVICES

Attention: Individuals with developmental disabilities, families, providers, direct support workers, brokerage staff & advocates!

  • Learn about proposed budget cuts to DD services!
  • Learn what is being done to advocate for your services!
  • Learn what you can do!

Dates and Locations :

Saturday, January 8, 2011 | 10 AM – 12 Noon

Springfield/Eugene – The Arc of Lane County at 4181 E Street, Springfield 97478

Free child care available for those that pre-register by January 5th

Saturday, January 15, 2011 | 10 AM – 12 Noon

Portland – Providence St. Vincent Medical Center, Souther Auditorium at 9155 SW Barnes Rd

Saturday, January 22, 2011 | 10AM – 12 Noon

Medford – Community Justice Building at 1103 West Main Street, Medford 97501

Additional Advocacy Events in Salem and via Video Conference Planned

Speakers Include:

MaryLee Fay, Oregon Department of Human Services, Seniors & People with Disabilities, DD Program

Kathryn Weit, Oregon Council on Developmental Disabilities

Organizers from your community

Additional Details :

For Jan. 8th Child Care: Call Misty at 541-206-7693

Email:  info@oregonddcoalition.org

Sponsored by the Oregon DD Coalition | www.oregonddcoalition.org

PDF Version of the DD Forums Flyer – Jan2011

Posted in Other Events | Comments Off on PROPOSED STATE BUDGET CUTS TO DD SERVICES