The Interfaith Disabilities Network of Oregon (IDNO)
Beaverton Citizens with Disabilities Advisory Council
Thursday, October 21, 2010
11:00 a.m. to 4:00 p.m.
n/a
2010 IDNO Community Wide Disabilities Resource Fair
is a family Autism consultant currently serving families in Oregon, Washington and Australia. She has been in the field of autism since the early 1990’s, starting as an aide, behavior therapist, group home parent, teacher and autism consultant for ages 0 – 18 years. She volunteered with the Autism Society of Oregon for 7 years and was president of the board in 2010. In 2008, she started the Portland Autism Group for professionals, focused on ensuring best practice and resources for autism in our Portland community. Barbara was an active board member and secretary of the Autism Research and Resources of Oregon until late in 2011.
Barbara started her work in Santa Cruz, California and received her Bachelors of Science in child psychology before moving to Oregon for her Masters of Science in Developmental Disabilities. She is trained in numerous approaches in serving children with Autism including Structured TEACCH, DIR/FloorTime, PRT, DT, the STAR program, Sensory Integration, and more. She has found her true motivation is in serving families using Relationship Development Intervention®. She has been a certified RDI® consultant for 6 years. She has worked for the county, public school system, a private therapy center and now owns her own consulting business: www.barbaraavilaconsulting.com.
Tuesday, October 12th 2010
6:30-8:00 PM
ARRO will be hosting a panel discussion on high school transition for teens with Autism. The panel will feature Jonathan Chase, Peter Fitzgerald, and David Abramowitz, discussing the ins and outs of transition out of high school and into adulthood as it relates to teens with Autism.
The panel will also be taking questions and offering advice specific to the laws in the state of Oregon.
Jonathan Chase
Jonathan Chase is an adult with Asperger’s Syndrome and a member of the Autism Society of Oregon’s board of directors.
works with the Youth Transition Program with the University of Oregon and has over 30 years of experience as a special ed teacher and transition specialist.
also has over 30 years of experience working with transition-age teens and their families in the Eugene school district.
Jonathan, Peter, and David all serve on the Transition Subcommittee on the Oregon Commission on ASD.
This event is open to the public and will offer information helpful to parents of children with Autism who are currently in high school or looking ahead to high school in the future. Teens and adults with ASD, service providers, and professionals are welcome to attend and ask questions. The forum will be held at the ARRO Westside Family and Community Center and a $5 donation is suggested, but not required, to help support ARRO’s mission and our efforts to support the autism community and develop resources that meet the needs of our families and individuals with autism throughout their life and throughout the spectrum of ability. Handouts, refreshments and coffee will be available. Walk-ins are welcome, but RSVP’s would be appreciated. Please email Jonathan@JonathanChase.Net if you plan to attend or have any questions.
The ARRO website is http://arroautism.org/
Handouts and Printed Material from the Forum :
Thank you for creating a place for us to communicate about events and all that ARRO does for our community. I am proud to be a board member!
Who:
The University of Washington Autism Center (UWAC)
The Simons Simplex Collection (SSC) project is a new initiative to search for the causes of autism. Earlier research efforts studied multiplex families, or families with more than one child with autism. The current study is focused on families with just one child with autism, called simplex families, which will provide insight into the most common and unexplained form of autism. This comes at an exciting time in history, in which breakthroughs in gene mapping, advancement of high-tech tools, and the latest brain research present a unique opportunity for progress.
The SFARI Simplex Collection (SSC) is a core project and resource of the Simons Foundation Autism Research Initiative (SFARI). The primary goal of the SSC is to establish a permanent repository of genetic samples from approximately 3,000 families, each of which has one child affected with an Autism Spectrum Disorder (ASD) and parents unaffected with ASD.Each genetic sample will have an associated collection of data that provides a precise characterization of the individual (phenotype). Rigorous phenotyping will maximize the value of the resource for a wide variety of future research projects into the causes and mechanisms of autism.
For full description of this study, please see the following web site : https://sfari.org/sfari-initiatives/simons-simplex-collection
Your family may participate if:
none known
Participation in the study includes two phone calls to determine if this study is a good fit for your family, completion of several questionnaires about your children (both the child with an ASD and the one(s) without) and both parents, and a visit to the UW Autism Center on the UW Medical Center campus. The visit to the UW Autism Center will include diagnostic, cognitive, and language assessments for your child with an ASD and interviews with one parent. Additionally, we will collect photos, measurements, and a blood sample from your children and both parents.
If you choose to participate in this study, you will be asked to respond to a number of questions over the phone, complete
several questionnaires, and participate in a visit to the UW Autism Center. The phone calls will last approximately two hours, the questionnaires will take approximately two hours to complete, and we will ask that you schedule three hours for your visit to the UW Autism Center.
Your child with an ASD will receive a behavioral assessment free of charge. We will also provide parents with oral feedback and a brief, written report regarding their child’s assessment results.
Participants will be compensated for parking. In addition, for completing the phone calls, questionnaires, and visit, families will be provided an honorarium as a thank you for their contribution. Families consisting of four participating members will be provided with an honorarium of $250, and families consisting of three participating members will be provided with an honorarium of $200. Families will also be making an important scientific contribution to understanding more about the genetic basis of different forms of autism. Although autism does tend to run in families more often than would be expected by chance alone, in most cases children with an ASD have no other relatives with an ASD. Therefore, by participating in this study, families will help advance our understanding and potential treatment methods for the most common form of autism.
The study has been approved by the University of Washington Human Subjects Review Committee. All researchers working on this study are very experienced in working with families and children with autism. You may feel some pain associated with having blood drawn through a vein. You may experience discomfort, bruising, and/or other bleeding at the site where the needle is inserted. Sometimes people get dizzy or feel faint when their blood is drawn. Blood draws are completed by trained phlebotomists at the University of Washington Medical Center.
The members of the University of Washington research team involved in this project are:
Additionally, the project involves autism researchers at 12 other academic institutions throughout North America.
1.800.994.9701
ddrinfo@u.washington.edu
Funded by The Simons Foundation
Not available at the time of publishing
To study the use of Vitamin D as a method of intervention to prevent the recurrence of autism in newborn siblings in families with at least one child with autism.
Pregnant mothers will be started on daily Vitamin D3. The mother will have the dose of Vitamin D increased after the baby is delivered if the mother breast feeds the baby.
If the mother bottle feeds the baby, the newborn will be given a small daily dose during the first year and increased during the second year.
The participants will receive all supplies of Vitamin D free of charge.
Travel expenses will not be paid by the study.
The costs of all study procedures and tests will be paid by the grant.
Families will have access to lab results.
There is no other compensation for participation in the study.
We are recruiting 40 mothers and 40 newborns to be in each of these studies.
For participants who do not live in the Portland Oregon area, we can work with you via phone, Skype and email for communication.
First Published Here : 8/5/2010
Calling All Pirates and Land Lubbers
To A Full Day Of Pirate Fun
Pirate Party 2010
Saturday, August 14, 2010
Three Events:
5K Pirate Fun Run/Walk: 8:30 am – 10 am (see details below)
Family Pirate Party: 10 am – 3 pm (see details below)
Pirates Come Out At Night Party (adults only): 7 pm (see details below)
This event is open to the public.
Please forward this email to all of your favorite Pirates.
Event #1: 5K Pirate Fun Run/Walk
All proceeds will benefit PACE Place Foundation & ARRO.
Two non-profit, 501(c)(3) organizations.
Start & Finish Location:
Project PACE Inc & ARRO
2360 SW 170th Avenue
Beaverton, OR 97006
Registration: 8:30 am
5K Fun Run/Walk: begins at 9 am
Cost: $20, cash or check, paid at registration only. Participants in the Fun Run/Walk gain free admission to the Family Pirate Party (see Event #2 details below)
The course runs through the THPRD Nature Park and finishes at the Project PACE, Inc & ARRO building.
Event #2: Family Pirate Party
All proceeds will benefit PACE Place Foundation & ARRO.
Two non-profit, 501(c)(3) organizations.
10:00 am – 3:00 pm
Admission is $5 per person, $20 maximum per family.
Pay at the entrance of the party.
Food, beverages, and raffle tickets are extra.
Location:
Project PACE Inc & ARRO
2360 SW 170th Avenue
Beaverton, OR 97006
Burgerville is generously sponsoring the Pirate Party and will be at the event selling lunch. The Burgerville mobile kitchen will be serving their full menu. The profits from the Burgerville mobile kitchen during the Pirate Party benefit PACE Place Foundation & ARRO, so please come hungry!!
Bring your bathing suit and a towel for water fun. Wear comfy climbing clothes and shoes if you want a ride on the zip line. Check our the carnival games, face painting, and other fun surprises. There will be food and beverages for sale and raffle tickets to purchase for some great raffle baskets.
Event #3: Pirates Come Out At Night (Adults Only Party)
All proceeds will benefit PACE Place Foundation & ARRO.
Two non-profit, 501(c)(3) organizations.
Adults Only.
Start time: 7:00 pm
End time: When the last Pirate walks the plank…
Cost: $25 per person
The cost of your ticket provides you with a buffet barbecue dinner, beverages, and dessert. Raffle tickets and casino games are extra. We will have Black Jack Tables and “Putt for Gold” where one lucky Pirate will putt for a possible $10,000 prize.
Location:
Project PACE Inc & ARRO
2360 SW 170th Avenue
Beaverton, OR 97006
Order your tickets in advance by sending an email to:
pirateparty.tickets@comcast.net
Please indicate how many tickets you would like to purchase.
Or, you may purchase tickets at the event.
The Pirates For Arrrtism Party is grateful to our generous sponsors:
Presenting Sponsor:
Burgerville
Get a voucher for Burgerville’s August 11th, 2010 special fundraiser for ARRO/PACE.
Other Sponsors:
Kruse Park Chiropractic Clinic
Sincerely,
Kathi Calouri, Ph.D.
Clinical Director
PACE Place
503.356.8334, ext. 2#
Thanks to the Rose City Classics for their support!
Results will be posted soon. Thanks everyone!
The 2009 Sean’s Run from Autism was successful!
Here are the race results:
Note – requires Acrobat PDF reader!
Click on the pictures to see the Picasa Web Album – you can download pictures from there!
The race results are in PDF format on the side bar – check them out!
Thanks to everyone who turned out!
