The Sea of Autism

The Sea of Autism is an Autism Awareness Event to be held in Portland, Oregon in the summer of 2008. Check their website for more info: www.SeaOfAutism.com

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April 2009 Autism Awareness Events

Sean’ Run from Autism 2009

Saturday, April 25th, 10 a.m. at Oaks Park

http://www.oakspark.com/

7th Annual Autism Walkathon

Autism Society of Oregon

Sunday, April 19th, 10:30 a.m. at Oaks Park

http://www.autismwalkathon.com/

http://www.oregonautism.com/

Third Annual Autism Ball

Autism Society of Oregon

TBA

TBA

http://www.oregonautism.com/

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ARRO’s Mission

The Autism Research & Resources of Oregon (ARRO) will produce and promote a center of excellence in the field of autism research and services in the state of Oregon. This center will be known as the Oregon Autism Research & Services Center. This Center will have as the core value nurturing of individuals and families of individuals with autism so that they may contribute as appropriate at the level and the time when they are ready to contribute.

The six thrusts of the center are:

  1. Medicine; research and clinical services
  2. Education; research and direct services
  3. Interventions and therapies, evaluation and development
  4. Vocational training, on site and off site services
  5. Social skills training for the individuals with autism of all ages
  6. Services; the identification of and coordination with existing agencies, and development of new programs that benefit both the individuals with autism and their families.

The Oregon Autism Research & Services Center will:

  1. Be a physical place.
  2. Work with autism and autism like disorders such as Asperger Syndrome and Pervasive Developmental Disorders.
  3. Work with individuals with autism of all ages and their families.
  4. Have multidisciplinary research which includes medical, educational, psychological, social services, and/or vocational training aspects.
  5. A scientific think tank for cutting edge research into interventions, therapies, treatments and causes of autism
  6. Promote the inclusion of individuals with autism in their families and communities.
  7. Help families assist each other by encouraging grassroots and family driven programs.
  8. Create ongoing relationships with businesses, schools, and community service agencies to develop skills so that these individuals can be contributing employees and citizens.
  9. Verify all projects and programs using scientific research methodologies and documentation.
  10. Develop best practices paradigms for all projects undertaken.
  11. Develop anchor tenants and partners:
    – house and partner with a medical/dental clinic
    – house an alternative school with model classrooms that will develop and demonstrate best practices
    – partner with local universities to provide training prototypes and practicums for future professionals in field addressing these disorders.
    – house and partner small business to encourage the development of vocational training opportunities.
  12. Rent or provide office space and meeting places for autism related organizations (both non-profit and for profit) and agencies; such as Autism Society of Oregon, Project PACE, Center for the Study of Autism, Autistic Children’s Activity Program, Inc., county developmental disabilities program offices, etc.
  13. Do co-ventures with off-site businesses to provide vocational training and employment opportunities.
  14. Provide a place that fosters and advances the existence and development of multidisciplinary model programs and services.
  15. Do what is required for the person with autism to make the maximum recovery from autism; not the minimum required by law or allowed by insurance companies. Help the person with autism lead their lives to the fullest measure possible. Help the families of people with autism lead full lives, not lives overcome by the existence of autism in their family member.
  16. Be a place where professionals, families, and individuals with autism can work, interact, recreate, and play together; and feel secure so they may learn and grow.
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Advisory Board

  • Sen. Mark O Hatfield
  • Emily Karr, Attorney, Stoel Rives
  • E. Gene Stubbs, M.D Associate Professor Emeritus of Psychiatry & Pediatrics
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Board of Directors

  • Dr. Steve Edelson – is director of the Salem based Center for the Study of Autism and is a research psychologist associated with the Autism Research Institute.
  • Kathy Henley – is the parent of a young adult with autism and was Executive Director of Autistic Children’s Activity Program.
  • Dr. David Krug – is the parent of and adult son with autism and was a professor of Special Education at Portland State University.
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Bernard Rimland, PhD

Dr Bernard Rimland was a friend to us in every way possible. He was the first psychologist I ever met who actually understood what my son was going through. He was the first professional I met who really agreed with me that autism is a medical problem. He was the first person to encourage me that I could actually make a difference in my son’s future.

Dr. Rimland helped found the Autism Society or America to get information to  families. He founded the Autism Research Institute to provide researchers and families with support for their belief that the cause of autism can be discovered.

Dr. Rimland helped numerous small organizations, like ours, by working with local people to organize their community and advocate for the children and adults with autism.

There are so many more reasons that Dr. Rimland was, is, and will continue to be important to every person, and family, with autism. To read more about Dr. Rimland, go to the ARI website and read his tributes page: http://www.autism.com/ari/rimland/tributeindex.htm

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Autism Research Institute

This is the original autism information resource, organized in the 1960’s by Dr. Bernard Rimland in San Diego California. Dr. Rimland recently passed away and the ARI is now being lead by Dr. Steve Edelson. The website is: www.autism.com

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Autism Society of Oregon

The Oregon Chapter of the Autism Society of America.

Visit them at their website

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Dr. Krigsman Lectures

Dr. Krigsman visited the Pacific N.W. and delivered lectures in Seattle and in Portland. He presented on gut issues in autism.

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Heart of Sailing

Recently the Heart of SailingClub visited Portland! Eric Hamblen, of Project PACE, has agreed to be the local coordinator for this non profit which takes kids with autism sailing on the Columbia River! (See Heart of Sailing for their many other locations around the country.) After the sail, we filmed a TV show with George Saidah, Eric Hamblen, Donilee McGinnis and her brother David McGinnis! The video should be available in January on Portland Area Cable Access. Check back for the dates – and also to watch the video online!

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