Wow. It sure has been a long time since we sent one of these, hasn’t it? How long? Well, since 2013 when a technical problem interrupted our E-mail Newsletter system. Fixing it was added to our rather sizeable ToDo list (you have one of those, yes?) and work carried on.
Well, here we are in the final month of 2014 and we finally got a Round-To-It and the system is back up and running.
Now, granted, it has been a long time, but, still … why now? What is it about today that makes it so important to have things working again?
Simply put – we’re still here, still working, and we need your help with a very special annual project.
Family Holiday Assistance Project
As we all know, life can sometimes be overwhelming, and, for some of us, life with a family member on the Spectrum can add an enormous financial strain as well. To help ease that burden at the holidays, every year since 2007, ARROAutism has been raising money for our Family Holiday Assistance Project. This project works with county developmental disabilities case managers to identify families in need. ARROAutism then provides selected families with two gift cards; one from Fred Meyer’s to allow a variety of purchases, and one from New Seasons Markets to allow the purchase of quality holiday foods.
I was so filled with gratitude for the kindness and thoughtfulness for the people who support the families with children with Autism like this. It was such an unexpected and beautiful gift, and one that was much needed. I am so grateful. What a gift! – T.M.
You make the difference
And that’s where you come in. With your help, we can help even more families this holiday season. So, please, join us today, and let’s see just how many families we can help.
Any conversation about the Family Holiday Assistance Project this year should give ample credit to Monsters of Rock 2014. With their help, this year we were able to raise $2660 towards this year’s Family Holiday Assitance Project.
Another big boost to fundraising this year was from the second annual Evening for Autism that raised money for ARROAutism’s general fund; some of which will be used for this year’s Family Holiday Assistance Project.
Finally, also helping us again this year is the Autism Society of Oregon with a generous contribution that will match up to a certain amount of what we raise here – potentially doubling your donation!
With such great partners, we’ve made a great start. Now it’s your turn. With your help, we can make a real difference to local Autism families in need during the holidays.
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List of Emergency Cold Weather Shelters. For homeless assistance resources and shelter openings in the metro area, dial 211 or 503-222-5555 to access the 211info Information and Referral System. Local shelter information is available online at http://www.co.washington.or.us/homeless Continue reading →
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If you live in the United States, you may not have remembered that you need to change your clocks as you go to bed this Saturday (November 2nd) (unless you wanted to wait until the official changeover at 2am on the 3rd).
This being fall it means it is time to apply that mnemonic “Fall Back,” and turn your clocks back by 1 hour such that 7am is still 6 am – ahhh, another hour of sleep.
Daylight Savings Time – A Brief History
Daylight Savings Time (also known as DST) has been around since the late 1800s, and is probably just as controversial now (check out this article from the Washington Post) as it was likely to have been then . Not every country uses daylight savings time. In fact, in 2011, Russia re-joined Japan, China, India, and 156 other countries by getting rid of daylight savings time. In the United States, Arizona, Hawaii, Guam and Puerto Rico and the Virgin Islands do not observe Daylight Savings Time.
What’s more, the start and end dates of Daylight Savings Time vary from time to time, and from country to country. In the United States, Daylight Savings Time was extended several weeks back in 2007 as part of the Energy Policy Act of 2005. As a result, Daylight Savings Time in the United States (Oregon included) starts (springs forward) on the second (2nd) Sunday in March, and ends (falls back) on the first (1st) Sunday in November.
Impact of Daylight Savings Time on Autism
Countless Studies have been conducted on the impacts of Daylight Savings Time, not the least of which have been on human health, especially as it relates to the interruption of natural biorhythms and sleep cycles. While I am not aware of any comprehensive studies specifically on DST and Autism, the same health impacts will obviously be at play. In addition, there are routine adjustments to consider. To help minimize those impacts, and any confusion that might come into play, try to walk through your family’s frequently visited places and make a list of clocks that will need to be changed and/or may cause confusion. Here are just a few to consider :
Telephones (land line phones and Cell phones)
Computers (most will change themselves)
Clocks at School
Clocks at Therapy
And, remember, the Fire department also reminds us that this is a good time to check the batteries in our Smoke Detectors. This is obviously a significant issue for those with sensory integration issues, so, if you haven’t already, put this on the calendar to do while your sound sensitive family members are at school, work, or another appointment.
Just for Laughs
And, just for laughs, I’ve thrown in this Daylight Savings video sung by a bunch of Dads.
Not long after the fog machine smoke had cleared, and the drumming and lyrics had stop echoing in everyone’s head, the final tally was reached – a sensational $2660 was raised.
30% to Goal Thanks to MOR5!
Thanks to Monsters of Rock 5, we have launched this year’s Family Holiday Assistance Project at a rocket pace, reaching 30% of our target goal of $7500.
ARROAutism Family Holiday Assistance Project
Each year, ARROAutism raises money to provide families in need with two $50 gift cards, one each from New Seasons Market, and Fred Meyers respectively.
“I was so filled with gratitude for the kindness and thoughtfulness for the people who support the families with Autistic children. It was such an unexpected and beautiful gift, and one that was much needed. I am so grateful. Thank you very, very much for the gift card[s]. – TM”
Thanks to partners like Monsters of Rock, and donations from people like you, we are able to continue valuable this project. Please join us now, as we strive to help more families in need.
This may be the first time you’ve ever heard of nonPareil.
nonPareil Institute is a Texas based 501(c)(3) not for profit…
“dedicated to providing technical training, employment and housing to individuals who have been diagnosed with Autism Spectrum Disorder. We hope to one day be partially self-sustaining from the products our Crew build and market.”
In short, nonPareil is for those on the Autism Spectrum to learn programming skills necessary to compete in the real world market. And nonPareil’s commitment doesn’t just end when the students complete their coursework. In October 2013, nonPareil had
5 of our students are full-time employees of the company, with 31 other students being part-time staff.
A New Location Coming to Portland
As tech heavy as we are here in Oregon, and as many Autism families as are connected to the tech industry, bringing nonPareil to Portland has long been a vision of mine. Thanks to the efforts of a small group, including Justine Haigh, Max Janasik, Jeanna Johnson and Dave Brebner, that vision is becoming a reality.
nonPareil Portland Town Hall
To really get the flavor of nonPareil, and to help pave the way for the creation of a Portland location, we have all been invited to attend a Town Hall. There we will have the opportunity to
Meet the founders of nonPareil: Dan Selec and Gary Moore.
Hear Student Stories & Life changing impacts
See Crew Member Demonstrations
Meet the Students and Families who Attended the Portland Game Camp
Over time, with and without use, cans of shaving cream expel the gases inside that push the cream out of the can and into your hand. Often, this means that the gases run and leave a lot of shaving cream still in the can. To help keep your shaving cream useful for longer, keep the lid and turn the can upside down each time you are done. This way, the gases, which are lighter than air, will move to the “bottom” of the can, and will hang around longer so you can get the most out of your can of shaving cream.
Over the years, the Portland area has spawned a thriving and talented pool of rock musicians. On any given weekend, clubs around Portland and Vancouver are teaming with talented musicians that perform everything from original material, tributes, and covers. What many may not know is how tight knit that community of musicians is, and how they can pull together for a great cause.
Five Years of Monsters
Now in its fifth installment, Monsters of Rock PDX is an event that will see up to 60 musicians perform rock classics from the 70s through to now on one stage. This isn’t a selection of bands, but rather organizers taking talented musicians in different bands and piecing them together into mini–sets. These “super groups” have performed everything from AC/DC to Led Zeppelin. The Rolling Stones to U2. Tool to Soundgarden. Black Sabbath to Judas Priest and so many more. Current members from tribute bands such as Stone In Love, Shoot to Thrill, Appetite For Deception, and Motorbreath share the stage with artists such as Jennifer Batten (formerly with Michael Jackson and Jeff Beck), Greg Georgeson (formerly of Sequel), Bill Wadhams (currently with the 80’s pop band Animotion), and others ranging from Andrew Paul Woodworth and Brian Harrison to Michael Allen Harrison and more.
Monsters Benefit ARROAutism
This year all proceeds after expenses will benefit ARRO (Autism Research and Resources of Oregon) and their Holiday Assistance program. In doing so, Monsters of Rock PDX and the players performing at it will help provide assistance to allow families that are supporting a child with Autism the chance to have a Holiday they might otherwise not have.
Participate in Research that Makes a Difference: Don’t Delay – Final iPad Drawing for Subtype Survey Participants is July 31
ARI seeks parents, caregivers and adults with autism to take part in ARI’s Research Surveys. Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey before the deadlines will automatically be entered for a chance to win an Apple iPad.
Have a survey already in progress?
It’s not too late! Use your previously created login to access surveys in progress. Forgot your password? Use the “Lost or forgotten password” link and a new one will be emailed to you.
Parents & Caregivers Urged to Complete Updated ARI E-2 Survey to Identify Autism Subtypes by 11:59 p.m. PDT, July 30th
Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.
What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete – you can start the survey and then save it, and return and complete it another time. The
Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype.
Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI’s science newsletter, the Autism Research Review International. In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD.
Once the data has been collected and analyzed, we will send a summary report to all of the participants. If we do replicate our previous findings, we will also inform each participant to which subgroup their son or daughter belongs to.
International – this study is open to participants worldwide.
When: Data collection is ongoing, but the final iPad drawing for the Updated ARI E-2 Survey will take place July 31, 2014. The winner of the drawing will not be announced publicly.
If you have a son or daughter age 18 years or older, or you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.
Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.
What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete – you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.
Purpose: The purpose this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.
Compensation: Participants will be entered in a contest to win an Apple iPad. The next drawing for the Adult Medical Survey will be held September 1, 2014. Note: one entry per individual with ASD.
Where: International – this study is open to participants worldwide.
At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can’t join us live for the lecture and Q&A on the day a talk occurs, you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz.Visit ARI’s Online Learning site
Autism Research Institute | 4182 Adams Ave | San Diego | CA | 92116
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